[Urban Dictionary: ‘gone to ground’ = To take evasive action in order to avoid further attention. To
"lay low."]
My therapist
suggested I write this post for a couple of reasons: 1) Writing is a good
creative outlet for me and can serve as a catharsis (aka emotional dump); 2)
it’s a way of letting my peeps know what’s going on with me without having to
talk about me when I don’t feel up to talking about me (aka I’m sick of
myself).
It’s become
increasingly difficult for me to be in groups, to go to events, even to visit
one-on-one or talk on the phone. It’s a bit of a vicious cycle: I don’t participate
and so I don’t have anything interesting to talk about, and I don’t have
anything interesting to talk about, so I don’t want to participate.
Pain and
pain meds still conspire to keep my energy ebbing most days. I’m content to
stay home and bake or watch cooking shows or do crossword puzzles or spend far
too much time on Facebook watching Donald Trump melt down. I did get my studio
arranged so that I can do some collaging, another good creative outlet. But I
haven’t been spending much time with my music lately, just a bare minimum with
my ensemble, Tapestry. It mystifies me why music feels like such a chore these
days.
Choir rehearsals
start again in a month, and I still need to decide if I’m going to sing this
term. It feels daunting – not just the physical difficulty of getting
and being there, but it is an emotional drain as well and can include a lot of
conversations about how I am and what I’ve been doing (see paragraph 2).
Don’t get me
wrong – I love my friends and family and music pals to bits. I miss them. I am
blessed to have such rich relationships. But guess what? When I’m not available
those relationships suffer. I let people down by not responding to calls or
emails, by not initiating contact, and I let myself down by not having the
pleasure of their company, which always turns out to be so nourishing.
And then! I
have to fight the shame and guilt, and another vicious cycle is unleashed.
Some of this
is related to still getting used to being in a wheelchair 90% of my mobile
hours. Some is the very real possibility that it may soon be 100%, as the nerve
damage seems to still be progressing. There is ongoing grief about all that I
(rather we: I have to include Laurie here) have given up: I would kill for a
walk on the beach or a hike in the forest; I would love to dance again; to go
out to dinner or a concert without having to worry if I’ll be able to access
the venue.
When can I
just ease into acceptance? This is the new normal after all – for now.
So I would
ask this of you, my dear friends: When you see me, I may not want to converse
much. Please don’t take it personally. I need to reboot my life, which means
this hiatus may go on a while longer. If I want to talk about how I’m doing, I
will, but know that I might decline. I’d rather hear about you, or commiserate
about the train wreck of an election we’re witnessing - and maybe cheer a
little about having a woman president!
Laurie and
Liza and I will be spending a week on Orcas Island at the end of the month. I’m
excited at the prospect of looking out over calming waters and of having no
internet access for a week - unplugging will be good for me once I get over the
shock of it! Sounds like a good recipe for a reboot.